I have Exomphalos Major and that has a RISK of occuring in 1 in 10,000 births. Guess who was the lucky one?
So, basically I have a Large Ventricle hernia containing my liver, a section of my spleen and loop of bowel. It occurs when the abdominal muscles fail to develop and seal these organs inside, during gestation. It took 6 operations to cover, it however, could not be fully repaired (put back inside). Many may think it's wild or untrue but unfortunately for me, it is not. I am so happy because I am going to meet some other children who have it (yay, not the only one).
This rare medical condition has since caused my respiritory disease and Scoliosis (congenital).